Ascites has a dramatic impact on the quality of life of affected patients. Patients suffering from ascites report feelings of isolation and depression because of their immobility and limitations in their daily activities. It also entails a huge burden for their family members because of the frequent hospital visits for paracentesis and the feeling of being housebound and constant worrying when not around.
The British Liver Trust is the leading UK patient organisation supporting adults with liver disease and their families across the UK. They offer information and support, including a telephone Helpline, a range of publications and an online community with over 13,000 members. This is a nurse moderated forum where patients can access peer to peer support and discuss a range of topics including refractory ascites.
Patients with liver refractory ascites that had the alfapump implanted experienced a significant improvement in their daily life as demonstrated in the various clinical studies and through extensive commercial experience. When Sequana Medical interviewed patients that had been implanted with the alfapump, they all indicated how it changed their lives in a positive way, by feeling better and being mobile and self-caring again.
Patients reported that they were eating, breathing and sleeping better; able to cook for their family again, go on vacation without worrying about getting back in time for the paracentesis; feeling strong enough to do anything they wanted to do. Also their family members experienced a big change and were able to enjoy life together again.
Wife of an alfapump® patient talks about changes on her live.
68-year-old patient reports on her benefits through implantation of the alfapump® system.
21-year-old patient reports on recovered quality of life with the alfapump® system.
70-year-old patient talks about his recovered independence with the alfapump® system.
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